Get Involved · Events
Events
Join us in person or online — every event strengthens the ZTTK community and moves research forward.
ZTTK Awareness Day
September 20, 2026
Nationwide — online · Online
Shine the SON-light on ZTTK Syndrome. Our annual day of awareness and giving — every gift funds research, connects families, and spreads awareness of ZTTK syndrome.
ConferenceZTTK Global Conference 2026
July 17, 2026
Boston Marriott Cambridge, 50 Broadway, Cambridge, MA 02142
The annual gathering of ZTTK families, researchers, and clinicians. Three days of presentations, workshops, and community connection — July 17-19, 2026 in Boston.
ConferenceZTTK Global Conference 2025
August 9, 2025
The Royal Sonesta Boston Hotel, Cambridge, MA
A global gathering for families, clinicians, and scientists — the inaugural ZTTK Global Community Conference brought the worldwide ZTTK community together for two days of science, connection, and hope.
From News & Updates
Recaps and coverage of past ZTTK events, from the Foundation's News & Updates.
Inaugural Global Conference Brings Together 180+ Attendees
The first-ever ZTTK Global Community Conference united families, researchers, and clinicians for two days of science and connection.
News & UpdatesZTTK Foundation Presents at Rare Disease Day Events
Executive Director Ada Lio and Scientific Director Nathan Guo presented at the 10th Annual Rare Disease Day Event and the MassBio Rare Disease Day Forum.