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5K for ZTTK
Every September, our community runs, walks, or rolls — wherever they are in the world — to fund ZTTK research. No race course. No registration fee. Just movement, yellow, and purpose.
About the 5K for ZTTK
The 5K for ZTTK is an annual virtual fundraising campaign that takes place during ZTTK Awareness Month every September. Participants across the globe wear yellow, complete a 5K run or walk on their own route, and raise funds for ZTTK syndrome research.
There's no race venue and no entry fee — just your movement and your network. Every dollar raised goes directly toward research to develop treatments and, ultimately, a breakthrough for our SON-Shines.
Many employers offer corporate gift matching — ask your HR or giving program if your donation qualifies. Every matched dollar doubles the impact.
How It Works
Register on Givebutter
Once the 2026 campaign goes live on Givebutter, create your fundraising page there. Set a personal goal and share your page with friends, family, and coworkers.
Wear Yellow & Move
During September — ZTTK Awareness Month — put on yellow and run, walk, or roll your own 5K route. Any time, anywhere.
Share & Amplify
Post on social media with #CureZTTK and #ZTTKAwarenessMonth. Tag friends, share your Givebutter page, and ask your employer about corporate matching.
Thank Your Donors
Use the Givebutter portal to see and thank your supporters — every donor moves us closer to life-changing treatments for ZTTK.
Can't Run? Still Make an Impact.
Make a direct donation or start your own peer fundraiser to support ZTTK research year-round — we'll share the 2026 Givebutter link here as soon as it's live.