Get Involved
Get Involved
Every gift, every mile, every share moves us closer to a breakthrough.
How Your Gift Works
Connect Families
Your gift funds ambassador programs, family conferences, and community support for newly diagnosed families worldwide.
Advance Care
Fund the medical resources, standard of care development, and clinical tools that help families and clinicians navigate ZTTK.
Fund Life-Changing Research
Directly fund the lab research, mouse models, and biomarker studies that are building the path to a treatment.
Peer Fundraising
Start your own fundraiser for ZTTK — birthdays, milestones, or anytime.
Events
Upcoming Foundation events, galas, and community gatherings.
Conference 2026
The 2026 ZTTK Global Conference — connecting families, advancing research, building hope.
Conference 2025
Highlights from the inaugural 2025 ZTTK Global Community Conference — 180+ attendees and groundbreaking research.
ZTTK Shop
Support the Foundation while wearing our mission — a portion of every purchase goes directly to ZTTK research.
(opens in a new tab)Get Involved in Research
How families can contribute to research through registries, surveys, and clinical studies.