Our Mission

The ZTTK SON-Shine Foundation is committed to improving the lives of individuals with ZTTK by accelerating research to develop accessible and effective treatments and, ultimately, a cure. We focus on funding cutting-edge science, building strong support systems for the global ZTTK community, and raising awareness about ZTTK syndrome.

Our three pillars — Community, Awareness, and Research — guide everything we do: building a strong support system for the global ZTTK community, raising awareness about ZTTK syndrome so more families find us, and funding the cutting-edge science that unlocks answers.