Clinical Advisory Board

Our Clinical Advisory Board will be holding Zoom meetings with doctors who care for our SON-Shines. We want to gather more information on ZTTK symptoms, current treatments, and research needs.

ZTTK Families: Please forward this message to your doctors so they can complete a short 10-minute survey:

Dear [Clinician] - 

The ZTTK SON-Shine Foundation, the ZTTK syndrome patient advocacy group, is conducting a clinician survey and hosting Zoom meetings to better understand ZTTK symptoms and help guide future drug development efforts. Can you please complete the following survey? It should take about 10 minutes. For any questions, contact Nathan Guo at nguo@zttk.org.

We are also seeking Clinicians who see ZTTK patient(s) and are interested in collaborating! If interested, please email Nathan Guo at nguo@zttk.org.

Coming Soon: Page to be further updated with our Clinical Advisory Board!