During Rare Disease Month in Feb, join us to raise awareness and connect with key leaders in rare disease research and advocacy.

These events will bring together researchers, advocates, policymakers, and key stakeholders to discuss progress in rare disease research.

Board Members Nathan Guo and Ada Lio will share perspectives of patients, families, and caregivers with researchers and key stakeholders. Join them to make sure our community’s voice is heard!

Registration is FREE— JOIN US!

2/25 | 1:30-5:00 PM ET – 10th Annual Rare Disease Day Event: An Era of Innovation for Rare Diseases (Broad Institute of MIT and Harvard, Cambridge | Virtual)

• 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐀𝐝𝐯𝐨𝐜𝐚𝐜𝐲 𝐊𝐞𝐲𝐧𝐨𝐭𝐞 (𝟐:𝟏𝟓–𝟐:𝟒𝟓 𝐏𝐌): 𝑃𝑎𝑟𝑒𝑛𝑡𝑠 𝐴𝑐𝑐𝑒𝑙𝑒𝑟𝑎𝑡𝑖𝑛𝑔 𝑎 𝐶𝑢𝑟𝑒 𝐹𝑜𝑟 𝑍𝑇𝑇𝐾 𝑆𝑦𝑛𝑑𝑟𝑜𝑚𝑒

• 𝐏𝐚𝐧𝐞𝐥 𝐃𝐢𝐬𝐜𝐮𝐬𝐬𝐢𝐨𝐧 (𝟒:𝟏𝟓–𝟒:𝟒𝟓 𝐏𝐌): 𝑃𝑎𝑡𝑖𝑒𝑛𝑡𝑠 𝐷𝑟𝑖𝑣𝑖𝑛𝑔 𝑆𝑐𝑖𝑒𝑛𝑡𝑖𝑓𝑖𝑐 𝐵𝑟𝑒𝑎𝑘𝑡ℎ𝑟𝑜𝑢𝑔ℎ𝑠

2/28 | 10:00 AM-1:00 PM ET – Rare Disease Day Forum (MassBio, Cambridge | Virtual)