Events
Featured Past Events
2025 Feb Rare Disease Day Month Events
During Rare Disease Month in Feb, our Executive Director Ada Lio and Scientific Director Nathan Guo were honored to share their story and the ZTTK research roadmap at the 10th Annual Rare Disease Day Event, “An Era of Innovation for Rare Diseases,” hosted by The Termeer Foundation in collaboration with the Broad Institute of MIT and Harvard‘s Ladders to Cures Scientific Accelerator. Their keynote speech showcased our foundation’s mission on one of science’s biggest stages.
Watch their keynote here (1:02:35)
They also spoke at the 2025 Rare Disease Day Forum at MassBio, a leading platform spotlighting innovation in the diagnosis and treatment of rare and ultra-rare conditions. Their participation helped raise awareness of ZTTK and highlighted the urgent need for continued investment in research and care.
Watch news coverage here.
5K for ZTTK
During ZTTK Awareness Month this September, we invite you to join us for a virtual 5K run or walk to support ZTTK research. Every step you take and every dollar you raise will bring us closer to vital research breakthroughs. #CureZTTK #RareDiseaseAwareness