ZTTK Global Family and Science Conference

The Global ZTTK Conference 2025 hosted by ZTTK SON-Shine Foundation, is taking place August 9-10, 2025 in Boston, MA (USA). We have an exciting lineup planned, and a detailed agenda will be available in the coming months.

As it is our goal to continue to provide education and support to the ZTTK community, we are offering an early-bird registration fee discount of $100 per family, until May 16. From May 17, the price per family will be $150.

Preliminary Conference Logistics - We are currently planning the following:

• Programming may include sessions such as:

  • Ask Me Anything Panel with Clinicians: Discussion with clinicians

  • Patient/Caregiver Focus Group: Opportunity to participate in focus groups to inform research and medical focus areas

  • ZTTK Research Updates: Annual update on ZTTK research findings and future opportunities

  • ZTTK Data Collection Program: Understand how patient data are critical for drug development and clinical trials

  • Family Support: Sessions on caregiving, advocacy, and community-building activities

  • Sibling Connect: Sessions for ZTTK siblings to connect

• Childcare services: Free, professional childcare services at the conference site for ZTTK children of varying abilities and siblings

• Financial support: Need-based stipend for travel and/or lodging expenses for families, please email Ada Lio for scholarship information. All requests must be received by April 1, 2025.

  Please email Ada Lio at alio@zttk.org if you have any questions or suggestions!

  Following completion of your registration, you will receive event emails from our partners at The Madison James Group. You can contact them at abby@themadisonjamesgroup.com for any questions related to registration or event logistics.

  Housing and Travel

  A room block has been secured at the Royal Sonesta Boston, and a link to secure your room(s) will be provided to you after completing your registration. If you are traveling from abroad and need any assistance with your VISA application, please contact abby@themadisonjamesgroup.com and a formal invitation can be provided. ZTTK is not directly booking travel arrangements, but if you have completed the scholarship form for financial travel support, more information will be provided to you in early April.