ZTTK Global Family and Science Conference

Pre-Registration

Mark your calendars and join us in Boston, MA (USA) during the summer (August 9-10) for the Global ZTTK Conference 2025, hosted by ZTTK SON-Shine Foundation! 

Preliminary Conference Logistics - We are currently planning the following:

  • Programming may include sessions such as:

    • Ask Me Anything Panel with Clinicians: Discussion with clinicians

    • Patient/Caregiver Focus Group: Opportunity to participate in focus groups to inform research and medical focus areas

    • ZTTK Research Updates: Annual update on ZTTK research findings and future opportunities

    • ZTTK Data Collection Program: Understand how patient data are critical for drug development and clinical trials

    • Family Support: Sessions on caregiving, advocacy, and community-building activities

    • Sibling Connect: Sessions for ZTTK siblings to connect

  • Childcare services: Free, professional childcare services at the conference site for ZTTK children of varying abilities and siblings

  • Financial support: Need-based stipend for travel and/or lodging expenses for families

    Please email Ada Lio at alio@zttk.org if you have any questions or suggestions!