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Care

Caring for Sunshines — guidance for caregivers and clinicians.

Newly Diagnosed What is ZTTK?The SON Gene Symptoms & Diagnosis By the Numbers Clinical Care For Clinicians

Research

The science and ongoing research on ZTTK syndrome.

Path to a Breakthrough Current Projects Publications Participate in Research For Researchers

About Us

The people, principles, and partnerships behind the Foundation.

Our Mission Our Team Partners Community Happenings Transparency

Get Involved

Every gift, every mile, every share moves us closer to a breakthrough.

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Newly Diagnosed
What is ZTTK?
The SON Gene
Symptoms & Diagnosis
By the Numbers
Clinical Care
For Clinicians

Research

Path to a Breakthrough
Current Projects
Publications
Participate in Research
For Researchers

About Us

Our Mission
Our Team
Partners
Community Happenings
Transparency

Get Involved

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Events
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Conference 2025
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