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Research Milestone Update 2026

research

Several of our funded research projects continue to build on the foundational work already published on our research timeline.

The mouse model project and natural history study continue to advance our understanding of ZTTK syndrome.

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Foundation Receives $800,000 CZI Rare As One Grant

The Chan Zuckerberg Initiative awarded the ZTTK SON-Shine Foundation an $800,000 five-year grant through its Rare As One project.

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More milestones, research updates, and community stories from the ZTTK SON-Shine Foundation.

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