For SON-Shines and their caregivers to connect with the broader community.
Caring for SON-Shines — guidance for caregivers and clinicians.
The science and ongoing research on ZTTK syndrome.
The people, principles, and partnerships behind the Foundation.
Every gift, every mile, every share moves us closer to a breakthrough.
Research
From gene discovery to gene therapy — follow the science driving life-changing research.
Peer-reviewed papers and scientific literature on ZTTK syndrome and the SON gene.
Funding opportunities, data access, and collaboration with the ZTTK research community.
How families can contribute to research through registries, surveys, and clinical studies.
