Boston Globe Profiles ZTTK Foundation's Mission

On February 28, 2024, the Boston Globe published a feature article spotlighting the ZTTK SON-Shine Foundation and the families driving its mission. The piece highlighted the challenges of navigating an ultra-rare diagnosis and the determination of parents working alongside scientists to accelerate research.

"What we're trying to do is bend the time curve by working hard with scientists and other collaborators in this ecosystem to accelerate the understanding [of ZTTK]." — Parent of a ZTTK patient, quoted in the Boston Globe

Read the full Boston Globe article →

Media coverage like this plays a vital role in raising awareness for ZTTK syndrome, which affects an estimated 1,200 newborns each year worldwide, many of whom remain undiagnosed.