Yovani's Story

“Three heart defects that healed on their own. That is the kind of fighter Yovani is.”

Yovani was born at 37.5 weeks weighing 5 pounds 15 ounces, and was diagnosed with ZTTK in March 2017 after SON gene testing at 18 months. He was born with three heart defects — a small VSD, PDA, and PFO — all of which closed on their own.

He has bilateral mild-to-moderate sensorineural hearing loss and wears hearing aids, along with strabismus and cortical visual impairment. Despite these challenges, Yovani started kindergarten on schedule and continues to make progress that makes his family proud.

His story shows that with early diagnosis, the right tools, and a supportive team, children with ZTTK can reach milestones that matter — at their own pace and in their own way.