Carson's Story

We waited 8 long years for our boy! After what seemed like a normal pregnancy, my placenta became depleted and Carson had quit growing at 37 weeks. The Doctors told me that we needed to deliver him right away and that he would probably be 2-3 pound. But, my boy came into the world weighing in at 5 pounds and 7ounces.We knew right away that he would defy the odds. He struggled to eat 2 ounces, but he kept fighting. They said that he may never walk, but at 2 years of age he walked and has hardly stopped. He was making great progress when had his first seizure. It was a bad one and had lasting effects on his cognition, but he always finds a way to communicate and get what he needs. He was tested for hundreds of different disorders/diseases and we were told that we may never know a diagnosis. But, in September of 2018 we FINALLY got the diagnosis, ZTTK Syndrome. Carson has changed everything about our family. We have slowed down and appreciate every little thing that matters. He makes this world a better place by existing. If you meet him, you can certainly see he is a ray of "SON" shine☀